Lupus

Patient-generated data gathered via social media surveillance may highlight unmet research needs and clinical care gaps for patients with lupus, ...

The main idea is using this data to determine research needs and potential gaps in clinical care.” We want to raise awareness and spark more research in this area with this study. Among the 179 included accounts, 34.64% belonged to people of color, who also accounted for 33.07% of analyzed posts, the researchers wrote. After filtering out duplicate content and posts from automated and commercial accounts, the researchers accounted for 8,446 tweets from 179 accounts belonging to patients with lupus. “This group includes underrepresented groups including women and people of color,” he added. To assess the feasibility of using Twitter to identify diverse patients with lupus and examine their perspectives on symptoms and medications, Reuter and colleagues conducted a retrospective user and content analysis of public Twitter posts from U.S.-based accounts between Sept. 1, 2017, and Oct. 31, 2018.